r/Narcolepsy 1d ago

Diagnosis/Testing Awaiting mlst…

I just finished an overnight sleep study/daytime mlst. What a torturous 24 hours! I was told by the sleep tech that they got “really good data” and that I should be getting a diagnosis from the sleep neurologist next week.

I really have no idea what to expect. All I know is that I slept during all 5 naps. I am pretty sure I fell into REM during all 5 naps, but honestly I only remember 4 dreams. Of those, only 1-2 were super vivid. Normally I have better dream recall, but it truly felt like the second I slipped into sleep, and began dreaming, they came and woke me up! (Is that by design???)

That’s why it felt torturous … I developed a severe headache midday and took some advil. (I had a triptan at the ready in case I developed a migraine, but thankfully my headache remained a caffeine withdrawal situation.)

The first nap was only 20 mins. The fifth was closer toto 40/45.

I’m so nervous for the results! I hope the data is conclusive. I am on 30mg Duloxotine SNRI; I had been on 90 for 4 years and could only safely taper down town to 30. I hope that despite my medication, my mslt will render a diagnosis. I don’t want to have to go through that again.

I’m so glad I found this subreddit today — so many of your posts helped calm me anxiety throughout the day!

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u/ruthgraderginsburg 8h ago

Hey, MSLT day twins! Yeah, that sucked. I hope we get some answers!