r/Narcolepsy • u/[deleted] • 2d ago

Rant/Rave How do you respond to those situations? Do you persevere or give in and take a break?

[deleted]

10 Upvotes

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3

u/AdThat328 (N2) Narcolepsy w/o Cataplexy 1d ago

When I'm at home, I'll try and push and if I can "get past it" and still function...i'll try and keep going. If it doesn't help, I give in and go to sleep. I can tell pretty fast if I'm going to keep going or not. To be fair naps usually don't make me feel better but it's better than just sitting staring at a wall and crying then falling asleep anyway.

I feel useless a lot and it really gets me down.

3

u/Altruistic_Plant7655 1d ago

I’m unmedicated and have a very accommodating job, so I typically give in. But I have the privilege to do so for work but in public I always drive so I can sleep in the car. Finally trained my dog to only bark if someone touches the car, so I can sleep peacefully

2

u/Direct_Court_4890 (N1) Narcolepsy w/ Cataplexy 1d ago

GOOD BOY! haha

3

u/angiebaconbits 2d ago

Feeling low on energy is pretty common for us, breaks are encouraged though. I notice a significant difference if I don’t get my nap in the middle of the day or if I miss my Modafinil.

As for this occurring in public, do your best to plan ahead to give yourself time/space for a break. Even if that’s a 15 min snooze in your car the difference can be massive.

Sorry you’re struggling with this ❤️‍🩹

1

u/Playwithclay11 22h ago

I honestly only push through it if I am in public or have to be attentive to others. While I am medicated that surely doesn't mean that I'm free and clear. I try to really pace myself as I also have other co occurring issues. What this looks like for me is only driving before 4 pm and taking scheduled naps or if just rest. I don't have a normal job anymore so I'm able to do this. I'm getting ready to start school in the fall and I'm really nervous about my ability to push forward.