No offense but… What? Are you asking if I’d rather be healthy and live like these two women than have my condition?
If so, then… no. Partially because by my understanding they are not, and cannot, be healthy. They each have control of only one leg and arm. They have reduced lung capacity, and one has pretty severe scoliosis. I think they live in a not insignificant amount of pain.
Even if they were healthy, no. I enjoy my privacy too much, and I can’t even imagine what my childhood would have been like. Mine sucked, don’t get me wrong, but.. as much as I resent how much my body and mind have been shaped by my condition, this would be on another level.
I normally respect the privacy aspect of a health condition, but in this instance out of curiosity why even bring it up? Then to act like someone who asked a question is dumb when you don’t elaborate beyond “chronic illness” is odd.
It shuts down any chance at conversation because no one knows what we could be talking about, so unless you’re just fishing for “get well soon” comments I really don’t get it.
Someone having a chronic illness and mentioning that illness isn't invitation for invasive questions. We live with these conditions, they're going to get brought up. Like the fact that disabled people have little to no benefits in such situations, like they originally commented. Mentioning disability or illness isn't fishing, nor is it an invitation. Imagine mentioning that you are married so someone asks you if you'd rather date your husband or his brother. That wasn't inviting that question.
No, I was literally pointing out that their question doesn’t make any sense. As in, I honestly wasn’t sure what they were asking.
Is the “that body” they reference my body, or the girls’ in the photo? Was an “effective timeshare control” assuming they each have full control of their body? Because they don’t. (And yeah, I think it’s a little bit insensitive to assume that they do, but I can concede that ignorance might justify the question.)
Also, just to point out, I brought it up because the guy I replied to assumed institutions would give a shit if you’re disabled, and I saw a chance to make light of that, as laughing is often the only option.
Because the reality is that they don’t, whatsoever. Almost no one does. Family does sometimes, for the lucky ones. Friends, if you try hard enough. But institutions? Only when they’re both legally required to and there are regularly enforced consequences.
Like fuck, these girls have photos of them just walking in public posted on the internet, and here we are talking about it.
Edit: Jesus, you’re a five day old account. I’m not interested in interacting with you. Goodbye.
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u/3z3ki3l 1d ago edited 1d ago
No offense but… What? Are you asking if I’d rather be healthy and live like these two women than have my condition?
If so, then… no. Partially because by my understanding they are not, and cannot, be healthy. They each have control of only one leg and arm. They have reduced lung capacity, and one has pretty severe scoliosis. I think they live in a not insignificant amount of pain.
Even if they were healthy, no. I enjoy my privacy too much, and I can’t even imagine what my childhood would have been like. Mine sucked, don’t get me wrong, but.. as much as I resent how much my body and mind have been shaped by my condition, this would be on another level.