r/covidlonghaulers 1d ago

Question Fluctuating weight loss due to autonomic disturbance? Anyone else get this?

So my weight is constantly going up or down, five to eight pounds over the course of a few days to a week. If I start sleeping more poorly, pushing myself harder, and other autonomic things start flaring, I start dropping weight like clockwork. Even without any change in my diet it’ll start going.

Does anyone else get this? I don’t technically know that it’s due to autonomic disturbance but I don’t think it’s an energy thing; I can do nothing but rest, but if my sleep is all over the place it starts up again.

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u/Ali-o-ramus 1d ago

I’ve been having a weight loss problem too! I dropped about 10 lbs and I can’t gain the weight back. I’m not really able to do much activity so I’m not entirely sure why I keep losing any weight I try to put back on. It seems like I’ve mostly lost fat mass, the only nice thing is my muscles look good (from just sitting on the couch…lol). It’s really weird

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u/Dense-Kangaroo8696 1d ago

Oh hey same re: fat mass. Kind of concerning but yeah, it’s an oddly effective weight loss/fat loss program haha

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u/tonecii 2 yr+ 1d ago

I have it too. Dropped ~20 pounds in the first 2 months. Now for the past 3 years, I’ve gained only a few pounds back. But I’ve found that it is rapidly lost with even the most minor inconveniences. Missing a meal, stress, lack of sleep, gut problems, etc.

Sorry you deal with it too. I don’t have insurance so I can’t seek out a doctor to find out what the cause may be. But hopefully you can find out why for yourself.

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u/Dense-Kangaroo8696 1d ago

Thanks. Best of luck! I’ll say what helps me is just balancing the other things; better sleep, less stress, changing my diet to avoid things that cause fatigue (histamine, grains, fats, etc for me). I’ve been to so many doctors and no one really has any answers, so you may not be missing much tbh

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u/friedeggbrain 2 yr+ 6h ago

Yeah im underweight and a lot of weird fluctuations