r/dysautonomia • u/shinyknif3 • 1d ago

Diagnostic Process I'm scared of doctors and that changes test results

Like at my doctor's appointment when I was laying down my rhr was 91 and when I stood it spiked to 120 and stayed there

Now I do the same thing at home and my rhr was 72 and spikes to 164, by minute two tho it's down to 112 and at min 5 it's at 102 and it stays there

I'm literally just scared of doctors bc of sth that happened once but like how on earth am I supposed to prove to the doctor what the problem is if it refuses to act the same way 😭

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6

u/verucasalt2 1d ago

Maybe get technology that keeps track like an Apple Watch, and send your dr the data.

2

u/shinyknif3 1d ago

Ive been looking into that that's what I'm thinking I might do

Ig im just scared they won't take it seriously unless they see it in person

1

u/GreenUpYourLife 1d ago

The watches record and save that information so you can look back at it while with them in the office.

I have one for that reason. It's pretty great. But some older doctors or just rude doctors won't listen just because they think they're right either way, that's when you find a new doctor or start getting sassy.

But if you're scared, it seems best to look for a new doctor.

2

u/shinyknif3 1d ago

Yeah this is probably my best option

2

u/Kezleberry 1d ago

Both readings are essentially within diagnostic criteria :-) it's normal to have some better days and some worse. It shouldn't take having those extreme swings to get diagnosed if you still fit the criteria on your better days. If they don't diagnose you, look for another Dr who will take you more seriously. But also important they rule other causes out make sure they do a panel of blood tests

2

u/shinyknif3 1d ago

I've gotten blood tests done and I'm gonna get an echo provided my parents actually agree

Hopefully it goes somewhere im getting sick of feeling like I'm crazy

1

u/Kezleberry 1d ago

Good. You're not crazy my dear ❤️

1

u/shinyknif3 1d ago

Thanks

2

u/AnarchyBurgerPhilly 1d ago

Me too I tell them! I’m like “I’m already having tachycardia because it’s too bright and I had a panic attack parking and I hate it here.” I keep lots of data at home.

2

u/shinyknif3 21h ago

Yeah I've decided this is what I'm gonna do but it's so annoying 😭😭

2

u/AnarchyBurgerPhilly 21h ago

Oh it’s so not fair. But you’re doing great advocating for yourself.