Loss of Independence

[u/BeTheChange1122]

At 41, I have become heavily reliant on my 79-year-old mother due to this chronic condition, which has left me with painful lesions on my back and under my arms. Somedays begin with her assessing and dressing my wounds. She carefully cleans the affected areas, sometimes applying antiseptic, which can be uncomfortable but is necessary. Then dresses the wounds after applying prescribed ointment on the areas I cannot reach.

Dressing me can be a routine in which she assists me into shirts while navigating around my sensitive areas. The discomfort I experience makes everyday activities difficult, and her support is crucial for my daily functioning.

In addition to wound care, my mother also manages meal preparation, as I can no longer cook due to the pain that arises. It is so difficult to focus not just because of the pain but, also the side effects of medication given to treat. I have lost so much weight because the pain makes me feel nauseous and I often skip meals. She ensures that meals continue, providing both the prescribed nutrition and a semblance of normalcy.

Transportation to doctor appointments has also become part of our life. I can no longer drive due to the discomfort I experience while sitting having a lesion between my buttocks. My mother takes on this responsibility with determination, although it adds to her own fatigue.

Facing these challenges has led to feelings of unwanted dependence and extreme frustration. However, I do recognize the importance of her support and the strength of our bond. While I grapple with the realities of my situation, I also TRY to learn and accept help and appreciate the love she gives so freely and non judgmental.

[u/demegoddesss]

I am so sorry you have to deal with this. I hope things become manageable enough for you and you gain your independence back ❣️