r/science Professor | Medicine 5d ago

Neuroscience New study finds online self-reports may not accurately reflect clinical autism diagnoses. Adults who report high levels of autistic traits through online surveys may not reflect the same social behaviors or clinical profiles as those who have been formally diagnosed with autism spectrum disorder.

https://www.psypost.org/new-study-finds-online-self-reports-may-not-accurately-reflect-clinical-autism-diagnoses/
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u/brookswift 5d ago

Ok, but as someone who was diagnosed, every time I get involved with a group claiming to represent Autistic people, it’s all self reported folks running it and they’re always the loudest folks. It’s made it to the point that I don’t expect to find people like me in groups supposedly for autistic people and makes me wish there was a word for people like me to use. I’ve interacted with other people who have been diagnosed and they’re very similar. I can spot them a mile away. They’re totally different from this generation of people who claim there’s some diagnosis industrial complex or a cost in the thousands as excuses. Those people still have struggles, but they’re not like me and I want to be able to connect with people like me through something. I don’t care if we have to rename it to something else, I just want a name that means the thing where people’s brains work like mine, and people professionally diagnosed with autism tend to be those people, but self reported people tend not to be.

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u/KnightRiderCS949 5d ago

All I heard was, not like me, not like me, not like me. Are you aware that ASD stands for Autism "Spectrum" Disorder? It's not a club. Get your ass out of the doorway.

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