Hiii just coming here to ask about what’s dating like if you have a disability like I do have but I see it probably its hard to find love and for someone to love you for you looking past the disability which I have is spastic cerebral palsy how it’s like for you guys? (I walk on my tiptoes)

Hi there, i want to do my university dissertation on the relationship between fine motor skills and academic achievement in people with cerebral palsy. I want to conduct interviews and questionnaires :) The requirements are: - 18 and over - have lived in the uk during any academic years - have cerebral palsy that affect their fine motor skills If you meet the requirements and are willing to participate or know anyone who does please let me know :) i want to do this because of the lack of research in cerebral palsy.

Hi all,

I'm 39 and I have spastic diplegia. I'm looking for some ways to stay active as I age, even though I've had to adapt a lot more in recent years due to decreased mobility and more low back muscle tightness.

I would like to learn how to ride a recumbent trike or something similar. I never learned how to ride a traditional bike, but my husband and 3 y/o love it, and it's something I'd like to do with them.

Is there some way I can rent a bike to try? Does anyone here have recumbent trikes to recommend? Any advice is appreciated!

made a custom safety jacket on the front pocket it says “Please be patient “ and on the back it say’s “I stutter and have Cerebral Palsy “ it was made after I got wind of the Arizona incident involving an individual who also had cerebral palsy my logic was making the vest would help better with communication if I ever have a encounter with the law etc However I was told not to be a “Liability “ (whatever that means) so i don’t even wear the safety vest out often I also made the vest because my logic is everyone has google everyone has a phone they can look up what cerebral palsy is for those who often walk pass and stare or wonder why I walk with a gait etc it’s for awareness i don’t wanna be looked at like a victim but at the same time i want to walk around comfortably i draw attention regardless so why not give them insight right?

I've been working at my first job for about 3 1/2 months at self-checkout, and I have to stand the whole time. I have spastic hemiplegia, and I’ve been in pain in my left leg (affected side) when I wear my brace or my right leg gets in pain when i don't. which is taking a mental toll on me. One of my managers has asked me twice if I'm okay, and I said yes even though I'm in pain. I feel bad for lying, but I don't want to be a burden. I mentioned my mild cerebral palsy before, but I don’t think he fully understands. I'm feeling hopeless because this has been going on for years. Doctors suggested PT, then SDR, but the medicine and rehab doctor said no. I feel overlooked because I’m considered mild, and I want this to stop interfering with my life. What should I do?

Are there any programs similar to California’s In-Home Supportive Services Program (IHSS) in Tennessee wherein a parent can be the paid provider for their disabled adult child? TIA.

My youngest son 5m has cerebral palsy. Currently he can only say seven words and cannot walk yet but he can stand for 30 seconds. He has occupational, physical and speech therapy twice a week and is making progress, but it is very very slow (which of course is to be expected ). Our school board is trying to send him to a school for intense special needs kids, but this school does not teach kids, it’s just a daycare. This will hinder his development and I don’t know what to do. Worse comes worse we will homeschool but studies show that cb is better to be by surrounded by peers. Has anyone had to deal with this kind of issue and what did you do? Thank you for your time, any advice is welcomed.

I have CP and was told by a certified vocational rehabilitation specialist that because I have binocular vision disorder, meaning that eyes don’t track together, I cannot be approved for a drivers license. I was shocked because I have never been told of this or noticed any problem with my vision. The vocational specialist said that I could try to fix this with vision exercises. I am Has anyone had success fixing BVD with vision exercises?

here is a work in progress about the way I view my body with Cerebral palsy

I was led to think it was really rare to be mild quad but then CP in UK got reclassified and was then called spastic diplegia.

Spastic hemi in my 20s left side affected. So doing things physically is fine since I have ok control of left side still and most things can be done with right foot which is good. My issue is I startle very easily, like someone just saying my name is enough. Car horns and loud noises almost always startle me.

I went out for some lessons. It was ok with an instructor, but I think that made me calmer. Drove around and even went on the highway. I just worry about tensing about or startling and causing an accident.

Hey,

I met with an orthopaedic surgeon today and he was very thorough. He didn’t recommend surgery bur has referred me to rehab and mentioned the possibility of botox injections in my lower legs.

Just wondering what your experiences are, if they go somewhere to relieve the pain as well as spasticity.

Hey,

I have had a dull, achy pain in the side and back of my right hip and lower back. I had an X ray today which was normal. It doesn’t worsen with activity, but does under cold temperatures. Could this be a CP thing?

I have IP disorder and when I was born I did not have proper flow to the brain causing hemiplegia. My Mother could never advocate for me because my disorder is so debated and it's hard to come by reputable sources. FOR YEARS MY DOCTORS WOULD VIOLATE ME AND TREAT ME LIKE I WAS STUPID!!! They never mentioned cerebral palsy and instead called it an inward right leg and a weak arm...They still sort treated it with physical therapy and braces, but I never had an alibi for my issues. At 10 this started to really get on my nerves and I asked about epilepsy and Cerebral Palsy. I questioned why they never recommend and EEG or MRI even with these CLEAR SIGNS OF BOTH.(I have focal seizures frequently) They told me that the were forced to explain my conditions in simple terms as to not confuse me. However even in private with my mom they WOULD NEVER GET ME EXPLICIT DIAGNOSES.. JUST REALLY HIGH MEDICAL BILLS!!! The main reason I'm mad about this is because now after years of trying to advocate for myself. I finally got diagnosed with a predisposition to seizures and hemiplegic cerebral palsy AT 15. Before this I had to explain IP disorder a very hard multisystem disorder to explain. Now I can just say cerebral palsy and people take me seriously. IDK if this is quite the right subreddit but seriously it explains so much from why I can't play instruments to why I limp.

So basically I am almost 20, and I am wondering if I have mild cerebral palsy. I have had a lot of trouble with things my whole life like I have an incredibly low muscle tone. like I have autism so I had a support worker yesterday she was holding 4 different bags from shopping yesterday that I got and I couldn’t even carry 1.

I can’t do things like ride a bike I just fall off idk if it’s the balance or what. I can’t swim either. And this is a bit hard to explain but I am just a bit awkward with how I do things like it causes me to drop dishes all the time and break them. If I try to dance or something even copying a dance it just doesn’t work. I have heard cerebral palsy can affect speech too. My whole life I have had speech therapy because people could not understand what I was saying, my speech isn’t perfect but it’s only really been understandable for a few years.

I have read in my autism report (since I do not have any contact with my parents) that when I was a baby I had a neck injury during birth and I was a floppy baby, I couldn’t hold my head up on my own for a long time so I had to have physio therapy to fix that. And I also couldn’t suck and had trouble swallowing.

It also isn’t progressive in angway as I’ve always been like this at the same level so it’s not getting worse.

Growing up I had OT, Physiotherapy, and speech therapy regularly. Now I am not sure if potentially I have already been diagnosed with mild cerebral palsy or another condition. Because I use to live in another country and since I have had these issues and the neck injury since I was born I would have been diagnosed in my old country. I live in Australia now and there is no mention of anything related to it on my current file.

I’m wondering if this sounds like mild cerebral palsy to anyone? I have no idea how to get diagnosed or anything. I am also just on disability payments for autism. And the reason I am looking to get diagnosed is because if I get diagnosed with something I can get government funded weekly physio sessions. Since I cannot afford it. And it is really affecting me not being able to carry stuff that you are meant to. And even driving I can’t drive because you need to push in a button on a gear stick to drive and I don’t have the strength to do it.

And I don’t even know if you can be diagnosed as an adult.

I have hemiplegic cerebral palsy it affects my right hand right arm and right foot as a result I walk with a obvious gait and my peers often assume I’m “retarded” I’ve been teased alot throughout the years and now i tend to isolate myself inside .. often when i go to public places I get the giggling and the whispers “oh their slow” “ oh they retarded “ or “ is their a crackhead “ I know none of it is true but it still gets to me I’ve been told often that everyone gets picked on about something and that I should just ignore them because people are ignorant but it’s only so much a person can ignore also i have a stutter so speaking up for myself is rather challenging in those moments i guess im asking how can i cope with this i would love a social life or to feel like im not being stared at or mocked for something I physically can’t change

I wore braces as a kid, it limited me to low-top shoes. I've pretty much stuck with that since, but I've been wondering if higher shoes might be beneficial. I always feel a bit bendy at my ankles, and it is very annoying when walking on uneven ground. Does anyone have experiences w/ high topped shoes? Could they be of benefit for me? I am going to try on some at the next opportunity, but my curiousity is impatient.

I have spastic diplegic cerebral palsy. It affects my lower half and my hand eye coordination.

Growing up i had custom AFOs.

Now that I'm an adult I'm finding the foot drop is bad again. My insurance will not cover anything.

I'm looking for something over the counter. But there are so many options online I get overwhelmed.

My name is Joseph Brandstetter. My brother Jacob is 41 years old, has cerebral palsy, and is nonverbal but fully mentally capable. He communicates through assistive technology and gestures. In 2019, he escaped years of abuse, revoked his abuser’s legal authority, and appointed me as his Power of Attorney.

With the help of Disability Rights California, Jacob got a Temporary Restraining Order (TRO) against our older brother, John. But in 2023, everything changed:

• LASD arrested me using a forged restraining order.
• They seized Jacob and delivered him to John—the person the TRO protected him from.
• They acted on forged documents, including a revoked POA and a military child custodianship form (DD Form 2790) with an affidavit stapled to it pretending it was a guardianship.

They even removed Jacob’s TRO from CLETS and NCIC databases, erasing his protection and allowing the abuser to file for conservatorship.

Instead of correcting this, Judge Brenda Penny assigned a Court-Appointed Counsel (CAC) who blocked all access to Jacob and helped funnel the case into a probate conservatorship, ignoring Jacob’s real wishes and autonomy.

Jacob has been isolated for more than two years, unable to communicate freely or live with his chosen caregivers. No capacity hearing. No proper legal process. Just silence, impersonation, and court complicity.

📂 Full Press Packet (with evidence):
https://drive.google.com/file/d/1ibUDpuuhZrL86Dbz7O-Px2cNvOCqRwGE/view?usp=sharing

🎧 LASD Audio (Admitting No Legal Proof):
https://drive.google.com/file/d/1yW4kaVP93Ol6myK4ZUYfxNLS7BGneEfh/view?usp=sharing

⚖️ Case #:
Los Angeles Probate Court No. 23STPB00315
Search at lacourt.org

Jacob doesn’t need to be conserved. He needs to be free.

—Joseph

I am a Vietnamese-American born with cerebral palsy (left-side hemiplegia) I need assistance looking for stay at home jobs, jobs that don’t require an in person interview because I can’t drive, if anyone is working at the moment and had similar requests to mine, please guide me, please list job websites that have stay at home jobs, completely remote and don’t require in person interviewing, thank you

Hello, I am a 21 female. I went to this camp from the age of nine to the age of 15 because Covid. But I miss camp so much, I miss my friends. But I am very thankful for the time I did spend there because I would not be as independent as I am today without that camp. The camp is call Bay Cliff Health camp it’s in Big Bay Michigan, it’s a 7 week overnight therapy camp for kids with physical disabilities. I know that most camps today are for kids with intellectual disabilities, but this 7 week camp is exclusively for kids with physical disabilities which is nice. Which is really nice is they have a variety of disabilities from speech difficulties to kids who need extra support( like being in a power wheelchair) and even blindness. This camp is a nonprofit. This camp does almost everything that a regular camp has, they do camp outs, cookouts, swimming, arts and crafts, recreation, archery, and music. This camp doesn’t allow any electronics, besides AAC devices. I know no one gets these anymore more but your kid will get to write letters to you and you can send them packages. The camp puts on dances and other really fun activities for the whole camp. As your kids grow up they might get to be in the teen program, which gives them a lot more freedom. They have a space on camp just for them. They even have their own place in the dining room( which is called the big house, and it’s literally a big house) they even get a prom. I gain so much independence from Bay Cliff Health camp. I learned how to dress myself and shower my self. I had really good food and songs that I’ll never forget, and made friendships that last a lifetime. The one thing that I want to mention is i think you can send your kids as young as four( they only go for 4 weeks). this camp has been around 1934. I learned how to walk on crutches thanks to them I don’t use crutches anymore because I am afraid of falling. This camp is great here’s the link to their website If you have any questions about this please feel free to ask. I love talking about Bay Cliff.

I seem to have a reliance on Lansoprazole and can feel the acid in my throat at night. If I don’t take the medication I know about it.

I know it’s common in CP, but just how common is acid reflux and gerd in CP adults?

I’m in the UK.