r/schizophrenia Nov 12 '24

Resources / Literature Frequently Asked Questions- r/schizophrenia

21 Upvotes

Welcome to r/schizophrenia!

Our subreddit rules are in the sidebar, we ask that you read and follow them. Feel free to post anything on-topic that does not violate these rules. We have a relatively comprehensive overview of how our rules are applied in reality available on the Rule Clarifications Wiki page.

For those who are new here, we have our Community Notices page which we would suggest users read. We also have our Creator Wiki for our participating artists and content creators- all of them have a diagnosed psychotic disorder.

Many first-time posters to this subreddit are concerned that they might be developing schizophrenia or they are concerned about other people who have- or may have- schizophrenia. We have resources available to answer these questions contained within the comments; if your question is completely answered by the information already given, it will be removed.

Mental health is complex. No symptom of schizophrenia is specific to schizophrenia alone, and there are many more common causes of those symptoms- especially in the prodromal stage. If you are experiencing an emergency, please call your doctor or local emergency services. We have a compendium of Crisis Lines available and may suggest r/SuicideWatch if you are experiencing suicidal thoughts and would like the most prompt attention.

(Credit u/soundandvisions for original post and comments)

Table of Contents


r/schizophrenia Jan 03 '25

Medication Cobenfy Megathread

54 Upvotes

Hey everybody, douchebag moderator here. As I'm sure you've noticed, Cobenfy has been the hot topic for the past couple of months. We've seen a lot of threads here and there asking questions about it or people sharing their stories. We even had an unofficial Megathread of sorts about a week ago

I did post an "official" one when it was approved by the FDA 3 months ago (wild that it has been 3 months already... time flies when you're having fun, eh?) here for general information... and on a sidenote, that snarky sign-off about the clozapine REMS came true around Thanksgiving. Not important, just for some cheap yuks.

To paraphrase what has already been said; Cobenfy is a novelty of an antipsychotic, the first one that presumably has zero risk of Extrapyramidal Symptoms (EPS), the most serious side effects of antipsychotics. While it does not seem to be as effective as clozapine- which, while having minimal risk of EPS, is still not zero- a new antipsychotic that actually works without EPS is unprecedented. It is similar to clozapine in how it affects the M1 and M4 receptors, so I refer to it as "diet clozapine" in a number of my write-ups... however, it is diet. Less side effects, but also less effective.

EPS have been accepted as a 'unfortunate reality' since the days of Thorazine, the first antipsychotic, and the second-gen of antipsychotics was heralded by clozapine- which was very effective, but also caused minimal EPS. The convention in psychiatry dictated that effectiveness was proportional to EPS, so clozapine changed the game when it came on the scene. If we are to use EPS as the benchmark for generations of antipsychotics- then Cobenfy may well be the first of the long-awaited third generation of antipsychotics.

Now, I want to be perfectly clear here- if you have experienced EPS on Cobenfy, please share your story. What the pharmaceutical companies say is not always consistent with how things actually work... something the company that has been marketing Cobenfy (Bristol Myers-Squibb) has gotten in trouble for before.

However, on the plus side, when I was at my psychiatrist's office a couple weeks back, he had a few sample kits of Cobenfy sitting on his desk. Apparently BMS' pharma reps had been making the rounds. So... word is getting out. People are excited. I can't say I blame them. It's a pretty big deal.

What to post here:

  1. Stories about taking Cobenfy, any hurdles with actually getting it (insurance, cost, etc.), whatever else- good or bad.
  2. Questions about Cobenfy that are not psychiatrist/pharmacist questions- please ask the appropriate licensed professional if it crosses into the realms of professional advice.
  3. Studies, news articles, anything like that.

What not to post here:

  1. "When is Cobenfy gonna be available in [country]?" We don't know, check with your government's health authority about that.
  2. Any antipsychiatry nonsense. You don't like meds, fine- but don't be a downer and dump on people who are excited. Go complain on the proper subreddit for that.

Anyways- have at it. Hopefully this post will turn out to be an effective tool for anyone popping in to check out the buzz on Cobenfy.

Thanks for reading!


r/schizophrenia 57m ago

Selfie Selfie sunday! Started exercising this week

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Saw a friend for lunch yesterday, got 100% on my accounting quiz last wednesday, started exercising, things are looking up :)


r/schizophrenia 3h ago

Selfie Day of the sun, day of the self...

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25 Upvotes

r/schizophrenia 9h ago

Selfie Selfie Sunday!! :)

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41 Upvotes

Went to oz comic con dressed as shinji from evangelion- didn’t commit fully with hair dye. Went with my friend. Hope you peeps are having a good weekend.

Peace love wifi


r/schizophrenia 6h ago

Hallucinations Do you have conversations with voices?

22 Upvotes

I am curious to discover other people experience.


r/schizophrenia 10h ago

Music My first selfie Sunday

39 Upvotes

r/schizophrenia 4h ago

Selfie Selfie Sunday 📸

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14 Upvotes

Not usually a selfie person, but yous have all inspired me 🙈


r/schizophrenia 3h ago

Selfie Selfie Sunday!

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10 Upvotes

r/schizophrenia 24m ago

Selfie Happy SS

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r/schizophrenia 5h ago

Selfie Selfie Sunday 🤯

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11 Upvotes

r/schizophrenia 12h ago

Opinion / Thought / Idea / Discussion Homeless people with mental issues.

44 Upvotes

Do you guys ever wonder how many lives would be saved if we could get the homeless with mental issues the right medication. It makes me wonder if I’ll lose it all one day. There are so many people here in LA that need help.


r/schizophrenia 8m ago

Selfie How's you?

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r/schizophrenia 12h ago

Advice / Encouragement I wanted to share my thoughts as a diagnosed Schizophrenic.

41 Upvotes

To all of you reading this, diagnosed or not. To family of those who are diagnosed or experiencing something similar. To those who feel as if they are hanging by a bare thread, as if the rest of the rope has frayed away and they feel they are dangling over the very gorge of Hell itself...

I see you. And let me tell you something real:

You have moved between the spectrums of sanity and insanity and have gradually been pulled from the clear light of reason to that of what seems like madness.

And somehow…

You’re still here.

You're. Still. Fucking. Here.

Looking for connections, looking for understanding, looking for answers and help with a hope that radiates how much you appreciate being alive despite a life that has been anything but kind.

That alone makes you a goddamn force of nature!

You’ve been through battles that most people couldn’t even imagine—let alone survive. You’ve stared into the abyss, heard voices that seem to echo through your very molecules, felt the world twist sideways beneath your feet, and kept breathing anyway. Do you even realize how powerful that is?

You’re not broken. You’re not weak.

You’re a motherfucking warrior!

We’re not here because we floated through life peacefully. We’re here because we clawed our way through some of the darkest mental terrain imaginable. And yeah, maybe we’re bruised. Maybe we’re tired. Maybe we’re still dealing with some shit that feels too big to name. But don’t let that fool you—you are stronger than 97% of people on this planet.

That’s not romanticizing it. That’s truth.

You’ve survived confusion, isolation, stigma, side effects, your own mind—and the fact that you’re even reading this means you haven’t given up. Even if it feels like you have. Even if you're hanging on by a thread. You're still here, and that matters more than you know.

So to the ones who are lost in the fog, who feel like giving up, who think no one sees them:

I see you. I hear you. And I’m standing with you.

You are not alone.

You are not too far gone.

You are not weak for struggling.

You are not a burden.

You are not your worst thoughts.

You are FUCKING INGREDIBLE!

And if no one’s told you today?

I’m PROUD OF YOU! I mean it!

So yeah—Be messy. Be angry. Be confused. But never forget: you are living through something that would break most people. And you? You’re still out here. Still fighting. Still you.

And that? That’s legendary. ❤️❤️❤️


r/schizophrenia 30m ago

Selfie Selfie Sunday~ weee

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Upvotes

r/schizophrenia 22h ago

Trigger Warning Just found this art I made when I first got psychosis (yes I used ms paint shut up).

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132 Upvotes

I didn't know lots of eyes were a common thing in schizophrenic art, so this really was my first indication that there was a problem with me. The eyes were meant to represent how I felt like I was being watched all the time. The big shadow figure represented how objectified that made me feel. The text at the bottom reads "I'm so sorry for everything I've ever done wrong" because I felt like everyone was mad at me.


r/schizophrenia 9h ago

Opinion / Thought / Idea / Discussion Misconceptions about the disorder

11 Upvotes

While I know that basically all disorders are misunderstood by the general public I’m often surprised by how often professionals think that schizophrenia is just hallucinations and delusions that are fixed by medications and not the multifaceted illness that it is. They will pile a million diagnoses on top of the first one because they can't seem to be bothered to crack open a dsm.

Cognitive issues, disorganization? Probably means you also have adhd. Social issues and you’re kind of a weirdo? Well, that’s probably autism. Lack of motivation and interest in things? Depression! Paranoia that isn’t outright delusional? Anxiety disorder! Recurrent suicidality because you have an illness that majorly affects your life? Personality disorder!

Or the flip side is viewing non hallucination or delusion symptoms as simply personal failures. Either way you end up feeling like shit about yourself because you’re either a person with a million mental disorders or you have one serious, stigmatized mental disorder on top of being a major loser.

I know true comorbidities exist but not every symptom needs its own diagnostic label, especially when it is much more easily explained by the main diagnosis.


r/schizophrenia 5h ago

Opinion / Thought / Idea / Discussion I'm tired of being a schizotypal ugly woman

5 Upvotes

I'm a schizotypal ugly woman and majority of men see me as a subhuman because of it. They see my ugly looks, my weird behavior and consider me creepy. Life is so unfair.


r/schizophrenia 4m ago

Selfie happy Sunday ☀️ hanging in there

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r/schizophrenia 20m ago

Opinion / Thought / Idea / Discussion Will they bring back institutions and would u support it?

Upvotes

Context: in the 1960s and onwards there was a push to slowly get rid of most of the insane asylums

I saw an article saying that trump says he will bring those back


r/schizophrenia 2h ago

Trigger Warning Does anyone ever feel like there is entity trying to be in sync with them, feels weird. I think they do it intentionally, but then some of them pretend they have to

3 Upvotes

Good news everyone


r/schizophrenia 5h ago

Trigger Warning Limited Edition

6 Upvotes

so we are really living a limited eiditon of life ? like the antipsychotics rotting your brain and destroying it , you cant really have normal relationships with the opossite sex , the system of life require you to make money , and if you go of them you also pressured against all this forces , so its a really stinky paradox and i hate it , and i will kick god ass when i die


r/schizophrenia 5h ago

Opinion / Thought / Idea / Discussion I don’t have symptoms when I dream

5 Upvotes

Do this happens to you ? I don’t have any symptoms when I’m dreaming. I can talk to others people without have mean voices assaulting me. I don’t seem to have negative symptoms too. Since I discovered this, I wrote my dreams every morning, hoping it will help me find a solution to my condition. How do you think it’s possible ?


r/schizophrenia 8h ago

Progress / Good News ☀️ April 5th Good News

8 Upvotes

Well, I had some really good coffee this morning, and I enjoyed the peace and quiet of having the house to myself and my spouse. I'll miss my family again soon, but right now it's nice to get back to my routine.

Does anyone else have any good news? No matter how small, I want us to share positivity here.


r/schizophrenia 16h ago

Opinion / Thought / Idea / Discussion What's your favorite video game

30 Upvotes

Mine is fallout 2


r/schizophrenia 2h ago

Rant / Vent Dont know anymore

2 Upvotes

so I just quit my job ...I cant maintain it anymore cant focus ..dont have the mental capacity to do it anymore ...I live with my mom ...I recently got diagnosed ....I dont understand it ...and I feel like the people around me dont understand .... so what do I tell my mom and them for leaving my job ...will I ever be able to keep a job ..why does everything feel so meaningless and fake ... and dont even know if the pills they gave me are helping much ... I dont know anymore