r/youngparkinson • u/Manon84 • 10h ago
r/youngparkinson • u/Manon84 • 3d ago
Parkinson's protein clumps in heart nerves could offer new treatment path
r/youngparkinson • u/Forreta88 • 4d ago
This is slight tremor is normal
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Is this slight tremor normal?
r/youngparkinson • u/Manon84 • 4d ago
Not what you picture: Ymir resident on living with Young Onset Parkinson’s
r/youngparkinson • u/Manon84 • 4d ago
AI model may predict brain age in Parkinson’s by stiffness, volume
r/youngparkinson • u/StrivePD • 4d ago
Parkinson's clinical research opportunity
Hi all - I wanted to share an opportunity that might be helpful to those interested in participating in Parkinson's clinical research. There's a free app called StrivePD that not only helps you manage and better understand your Parkinson's, but also connects you directly with clinical trial opportunities.
Currently, there is a clinical trial for individuals who have been diagnosed with Parkinson’s for at least 6 months and have not yet started dopamine medications. If you or someone you know fits this description, this could be a meaningful way to contribute to important research while potentially benefiting from new approaches to care.
You can learn more about StrivePD and see if it's right for you here (Free to use and download on the Apple App store): www.strivepd.com
Feel free to reach out or comment below if you have any questions—happy to help!
r/youngparkinson • u/Manon84 • 4d ago
Collaboration to expand access to alpha-synuclein protein test in US
r/youngparkinson • u/Ok-Regular436 • 5d ago
39y male symptoms
Hi everyone, hoping to get some insight on my symptoms. I have a neurologist appointment set up but unfortunately takes forever to get in. I have the following symptoms: heaviness in right arm and leg, right arm/shoulder pain, numbness and cramping in right hand sometimes, arm gets fatigued when doing everyday tasks quicker than it used to, feels like a slight tremor that’s more prominent on right side. MRI ruled out MS or tumor. Don’t see any balance or arm swing changes. Anyone have these same symptoms? Sometimes hard to tell if it’s true PD or anxiety.
r/youngparkinson • u/Manon84 • 8d ago
Advancing Parkinson’s Disease Care While Maintaining Focus on Dyskinesia
r/youngparkinson • u/Manon84 • 9d ago
Parkinson Canada Parkinson IQ+ you Montreal event may 31 registration
web.cvent.comr/youngparkinson • u/Enh-0325 • 10d ago
Parkinson's Disease and Swallowing- Survey for West Virginia University
qualtricsxmwv9tfp9cg.qualtrics.comHello, I'm a student at West Virginia University- studying Speech Language Pathology. My senior capstone project is about swallowing related to Parkinson's Disease. My group and I have created a survey that serves the purpose of better understanding the information that Doctors and other medical professionals are passing along to their patients. Please feel free to take the survey that is attached, it should take no more than 5 minutes. If you have any questions, let me know!
r/youngparkinson • u/Manon84 • 10d ago
Arlington woman shares young-onset Parkinson's journey and advocates for research
r/youngparkinson • u/Aromatic_Machine_987 • 11d ago
PD PARTICIPANTS NEEDED FOR SHORT SURVEY
Hi, I'm a researcher at Utah State University where we are studying ways to improve communication in Parkinson's disease. I'm reaching out to see if you can post this flyer in your Facebook group to see if there are some people with PD who are willing to take a survey about PD. IRB Protocol #12655
r/youngparkinson • u/Enh-0325 • 11d ago
Please Read
qualtricsxmwv9tfp9cg.qualtrics.comHello, I'm a student at West Virginia University- studying Speech Language Pathology. My senior capstone project is about swallowing related to Parkinson's Disease. My group and I have created a survey that serves the purpose of better understanding the information that Doctors and other medical professionals are passing along to their patients. Please feel free to take the survey that is attached, it should take no more than 5 minutes. If you have any questions, let me know!
r/youngparkinson • u/Shaky-McCramp • 12d ago
Wowww, I found an accurate PD simulator lol
Okay, so I'm just about 21 years post-dxd now (dxd at 34, I'm 55 now). I have some good days every now and then, and like clockwork they're more frequent in Spring and Summer. This year like many, March rolled in, the days are noticably longer, and dang but my body starts working better. So what's my point? It's coming coming soon, I promise!
Spouse and I started working on the garden. She'd really like to aerate/de-thatch our yard. Maybe useless, but got a pair of those strap-on spiked overshoe things sold as lawn aerators. Took me a stupid long time to get 'em fastened on my boots, took a first step on our soggy, clay-bound lawn, and 🤯:
The sensation! Of my feet totally sticking to the ground!. needing to really concentrate and use force to pull each foot up! It feels almost identical to just regular walking when I'm having a hard 'off' period. It's pretty uncanny!
SO I mentioned this to spouse and MIL, and god bless em, they were really excited to try it out & experience what we all deal with as part of this bizarre thing that is PD. I was truly touched, you know? That they wanted to get a little real insight into living as a PwP.
So, if it ever comes up/you'd like to school someone/etc, you can get an inexpensive pair for like $20ish online. BUT- the sensation only feels accurate if they're walking on really sodden, super clay-heavy soil!
r/youngparkinson • u/Manon84 • 12d ago
New Parkinson's treatment could help millions
r/youngparkinson • u/Manon84 • 13d ago
The pre diagnosis phase of Parkinson’s disease facts and mysteries
r/youngparkinson • u/Skinnyblonde3 • 14d ago
Performances
It seems attending hockey games, concerts, etc. are too much for me. I attended the ballet with a date. My nylons ripped and I dropped my plastic glass of wine while sitting down. Caused a scene unintentional. I couldn’t really relax until I got home. Man I hate this disease. Do you have difficulty in such venues?
r/youngparkinson • u/Manon84 • 15d ago
Selecting the Best Treatment Options for Patients With Parkinson Disease
r/youngparkinson • u/Manon84 • 17d ago
Gut neurons may offer way to treat constipation in Parkinson’s: Study
parkinsonsnewstoday.comr/youngparkinson • u/Manon84 • 18d ago