2
Does anyone here experience a feeling like difficulty breathing?
I differentiate between what people call “air hunger” and a different kind of dyspnea that isn’t accompanied by the feeling of not getting enough oxygen, even though I’m objectively getting less oxygen. It feels as though my lungs have shrunk. It takes an abnormal amount of effort to take an in breath. My breathing becomes very slow as well as shallow. I physically can’t hyperventilate. I used to get a different kind of dyspnea that was often accompanied by anxiety and it made me hyperventilate but this feels completely different
1
Does anyone here experience a feeling like difficulty breathing?
Mine can get quite bad, to the point my spo2 drops significantly
3
I am THUSDEPARTED
Those are so cool. You’re very talented
9
Is it normal to have extremely intense anxiety with this illness? Specifically in regards to brain pem. Or is that more associated with the LC group?
No I wouldn’t say that it’s normal to be anxious to such an extent. Are you sure that’s why he’s screaming? Is he perhaps overstimulated by something? When I was at my worst the sound of my caregivers footsteps and the pressure of someone leaning on my bed were agonizing
7
For those who rest most of the day, do you do it with breaks?
Id go insane if I didn’t
2
Why are trans men policing trans womens womanhood?
Misogyny and repackaged bioessentialism (“AMABs are inherently predatory because they’re male socialized”🤢)
2
Is there anyone else who spends a lot of time listening to audiobooks who'd be interested in discussing the books we read?
If there’s a book club I’m interested in joining!
1
Fermenting miso in orbit reveals how space can affect a food’s taste
They once installed an espresso machine on the ISS and it cost them millions of dollars. They called it ISSpresso lol
1
Sigma-1 receptor agonists?
When I brought this up with a psychiatrist she said many SSRIs are sigma1 agonists and that this whole thing is a pharma industry ploy to get people to buy an older antidepressant that’s falling out of use (Fluvoxamine)
1
Super Tight Calf Muscles
How do you reduce pressure ?
12
I need help pricing 😅
You’ll never get a decent hourly wage by selling crochet items unless you’re exceptionally skillful and have rich clients. If you want to make money with crochet, sell patterns
11
Elevated TGFB2 Levels in a Subgroup of ME/CFS and Long COVID Patients - Correlation with Mitochondrial Recycling and Hypoxia Proteins
Can you really draw any conclusions from this with a control group of 6 people and the p value of .5
1
Hello! Where are you from?
Just a reminder to consider whether it’s a good idea to reveal personal information. Someone might be able to identify you. Your comments are visible on your public profile.
There have been cases of malicious relatives and even psychiatric institutions identifying our users based on post history
8
What iPhone accessibility options do you find most helpful?
Reduce white point, Night Shift always on, spoken content for when my eyes are too tired to read
2
From which author have you read ALL of their works?
What do you think about Le Guin’s later novels, like the telling and the annals series?
1
The hubbub around staphylococcus toxoid vaccine
Not only is there no proposed theoretical mechanism, the study design was shoddy. It wasn’t even blinded.
1
The hubbub around staphylococcus toxoid vaccine
We don’t know if it works. The study wasn’t properly blinded. Participants knew if they received placebo or treatment. The route of administration was also questionable—vaccines shouldn’t be injected into the glutes
1
From which author have you read ALL of their works?
I really loved Scanners live in vain, can you recommend me a novel of his?
8
From which author have you read ALL of their works?
Your favorite Le Guin deep cut?
1
1
Any sensitive and v-severe patients tried non pharma options; IVIG, SGB, HBOT, Plasmapharesis, Stem Cells or other?
I’m sorry, I don’t remember where I found this information or if it’s even correct. Check her twitter, she shared her story there
1
Do I have it or is it psychosomatic?
Hi! Have you read the pinned post yet? If you scroll down to the bottom you’ll find a list of helpful resources. And make sure to check out our wiki. This page in particular might answer some of your questions regarding diagnosis.
3
Transfem enby visiting but wanted to ask a question to the transmasc/men
I see a lot of trans guys saying shit like that and honestly I think it’s so stupid. Like whenever there’s debate about “protecting women’s spaces” some trans guy posts a shirtless gym selfie saying “guess you want me in women’s restroom😜” and like,,, way to go dude you just found a way to make this about yourself and your abs! when really we should be talking about transmisogyny right now! Like this only diverts from the real issue, which is transphobia, and sort of tacitly affirms the idea that only people who pass deserve to use the restroom that they want.
4
Does anyone here experience a feeling like difficulty breathing?
in
r/cfs
•
6h ago
Dyspnea famously can be caused by anxiety, and anxiety is also a biological thing. Not saying it’s the only possible cause, but people with and without ME/CFS can get dyspnea from/with anxiety