r/Microbiome • u/sandranilea • 4d ago
Desperate for help.
Hello everyone. I'm in desperate need for help and I have been for too long now. I believe there's something really wrong in my stomach, and I'm just barely staying alive right now. I'm trying to help myself by figuring out what is wrong with me. My doctor doesn't believe me - she's called my issues psychological for over 6 months now. I have to save myself somehow. Will list symptoms and if anyone had any guidance or ideas about what's going on with me I'll be forever grateful. 😓
I'm a 37 year old female. Previously very healthy and active. 6 months ago I got a pneumonia and insane symptoms have since followed. I now have suspected Pots, a small hiatal hernia and esophagitis.
SYMPTOMS:
- Neurological issues when I swallow anything (skin burning/stinging)
- Overheat when eating ANYTHING
- Joint and bone pain
- Episodes where I wake up and my skin has become dry and flaky over night, and I pee like crazy
- Very upset stomach, always runny or constipated
- Stomach burns like fire near the ribs when I eat
- Tight throat
- Migraines from hell
- Swollen and red tonsils and sometimes swollen/white tongue but negative for candida several times.
- Periodically extreme fatigue
- Have had hypokalemia 5 times during these 6 months
- I'm either freezing or boiling up, seem intolerant to temperature changes
- Low grade fevers randomly
- Random anxiety attacks for no reason
- Acne prone
- Sometimes it burns when I pee when I'm in a flare but no UTI or STD etc.
My very first symptoms started in my stomach, and it feels like something is very wrong there. I've had upper endoscopy but they couldn't do a biopsy because the air they blow in just shot straight out of me and I was throwing up loads.
THINGS I'VE DONE MYSELF:
- Tried elimination diet but nothing helps
- Tried to stay hydrated with fizzy tablets
- Gone to several different doctors and had overnight stays at hospital for potassium IV.
- Tried low histamine diet ( no difference )
- Tried taking antihistamines and pepcid ( since many people have previously mentioned MCAS but no difference)
- Tried water fasting which helped symptoms after 4 days but only for a few days until I flared again.
- Scheduled an endoscopy to check bowels
- Scheduled at cardio for Pots
If anyone has any idea or recognises symptoms, please share anything and everything you can. This is intolerable, I'm barely functional at this point and the neurological pain hurts so so bad. I'm helpless and I live in Sweden so the doctor's here don't test for things like Sibo or leaky gut. I need all the help I can get. 🌷 I don't want to live in my own body anymore.
2
u/ImXenia85 4d ago
CIRS.All these are symptoms of Chronic Inflamatory Response Syndrom.it triggers all kinds of weird things like sibo, leaky gut, dysbiosis, mcas, etc, etc, etc