I’m late as usual. This is an oldie but goodie. It was made in Germany I think, 11 years ago and is my son’s favorite You Tube. It will make you feel wonderful!!!

Hello, I'm teaching a 16 y.o boy with DS guitar. Biggest problem is his memory, he forgets things as soon as I leave.

He also lies about understanding something, when he's clearly does not understand.

Explaining which string and fret is which is very hard, because he doesn't comprehend it. And I'm not sure if he hears difference in notes. He said he does, but last time he played some noise and called it a song of some artist, copying hand movements similar to chords, but those were not real chords, just an imitation.

Last lesson was successful, because he understood where frets are. Played a simple melody by following tabs. But I'm afraid that he'll forget everything again.

Any tips how to help little guy out? Guitar sub didn't even answer to my post.

P.S I got him 3/4 guitar, because of small hands, it helped a bit.

I am a first time mom with a 6m old son with DS. He seems to be going through a sleep regression. Im having a hard time figuring out dropping a nap, so he is still taking 4 naps a day. We struggle to extend his wake windows without him getting overtired. He is waking every hour at night, but thankfully is pretty easy to sooth back to sleep. His naps are pretty unpredictable, but he is starting to nap longer (he had a period of naps that were anywhere from 15 - 45 min) He does not have a protruding tongue and I dont think that he suffers from sleep apnea. We have a consistent bedtime and nap time routine that works for him. We try to keep him from getting overstimulated, but we do have him doing a lot of tummy time and other exercises as well as keeping him pretty engaged with activities during his wake windows. Do babies with DS have delays in sleeping patterns? Everything that I find on the internet is that children with DS typically sleep more. Has anyone sleep trained their child with DS? I have read that CIO is not recommended, but we aren’t interested in that method anyways. I guess I’m just looking for some insight into sleeping expectations for him. I hope that makes sense, I am oh so very tired 🤪

Does anyone have tips on having a 2 year old keep glasses on? The glasses have a strap but my son takes them off. Thanks for any help

Hi everyone!

I don’t know if this is a stupid question to ask but my baby boy is 5 months old and will be starting solids soon. He has amazing head/neck control and his Pediatrician advised he should be ready to start in about a month. I’d like to purchase a high chair now to practice him sitting in it (assisted of course for now) which we will then use for the long term.

I’d love to know which high chairs have worked for you and if there are any specific ones on the market for our LO’s.

TIA!

Hey there is it strange that I want to date a women with Down syndrome even though I myself have autism, adhd, anxiety and an acquired brain injury, I mean I don’t want it to sound like I’m only dating them because of their disability, since I do fancy girls with Down syndrome and tbh if your a girl who has Down syndrome and your using Reddit and you live in the UK please contact me as I really would love it if I can date a girl with Down syndrome

From the biggest accomplishment to the smallest moment, share a moment of celebration this week!

Please remember this is a thread to celebrate, not compare.

I love you world 🩷

My son was born earlier this week with a positive NIPT. We finally got the genetic testing back confirming our diagnosis. It's a bit surreal and completely different than last titime. We now have two kids with Down Syndrome. Baby boy is loved by his older brother so much.

Hello everyone! I found out that my baby had T21 at around 30 weeks. We already suspected it from the ultrasound, and the NIPT reinforced the suspicion. He was born premature at 36 weeks. The birth went smoothly, and he is doing very well! It’s amazing how feelings change over time, especially now that he is with us. Fear is gradually making way for love!

Hi all!

Wow, this sub has brought me and my husband so much joy, hope, happy tears and excitement for our upcoming DS daughter. We are currently 23 weeks, she is due in late July.

I am posting to see if any other families have had a similar experience or any advice for us. During our 20 week scan, we were told our DS baby girl has moderate hydrocephalus. She looks stellar otherwise- 4 chamber heart, two kidney’s, a nasal bone and her pinky finger looks great! The only concern they had was the fluid on her brain. She is VERY active and I feel her kicking throughout the day, despite having an anterior placenta. We have another scan next week, along with the echocardiogram for her heart. My worry is that the fluid could get worse. It could very well stay the same too. They told us about the shunt surgery. Of course, a brain surgery on a newborn is a scary thing to hear.

I was hoping to hear from other parents who may have had similar experiences during pregnancy and what it looks like after birth. I know the DS did NOT cause this, they are separate, but I was told it’s not uncommon for both to happen.

Thank you all again who post on this sub. We are truly so excited for her, and for her brother (16 month old, typical) so have a sister growing up.

We are the lucky few 💙💛

My 14 month old still stays at home with me. He doesn't have siblings, but since about a year ago we meet up with his cousins regularily. He often cries when they cry or play very loudly since he's not used to it. Now I know he would definitely learn a lot from some sort of daycare, but since he's so sensitive I haven't enrolled him yet. We've been going to a mommy meet up sometimes, but it is crazy. Of course the older children are loud and move fast and he just cries in agony. I'm there with him and I do think it might get better with time, but right now I can't even think of leaving him at daycare alone. Am I just an overbearing helicopter mom? Has anyone experienced something like this with an only child? Maybe earplugs might help.

We are looking for a psychiatrist in New York - upstate or the city - for our adult daughter with Downs. Our current physician is retiring Any suggestions would be greatly appreciated.

I am currently 28 weeks and 1 day and just found out my precious baby girl doesn't have a heartbeat. I'm beyond devastated. We found out at 13 weeks she possibly had t21 throughout NIPT test and then confirmed with the results of my CVS. We spoke to a genetics specialist and knew the higher risks of miscarriage because of t21 but I thought that we were in the clear having made it so far along.
We read so much and did so much research to be ready for her. I was counting down the days. My shower was supposed to be in 2 weeks. Now we have to schedule to be induced to give labor to my baby girl just to say goodbye. I guess I just needed to vent and to see if anyone went through this as well.

Hello, I’m working on a project designed to help individuals with autism, Down syndrome, and other neurodevelopmental disabilities improve their social skills. The focus is on practical skills such as basic interactions, navigating everyday situations, workplace scenarios, conflict resolution, and even dating and relationships.

The idea is to create a personalized, interactive, and multisensory training platform that empowers individuals to build confidence, independence, and meaningful social connections in their daily lives.

I’m reaching out to this community because I’d love to hear your thoughts on whether there are any existing tools, apps, or programs like this already out there that you’re currently using. What do you like about them, and what do you feel could be improved?

In a perfect world, if you could have any kind of social skills training tool that would make a real impact on your social interactions and independence, what would it look like? What features or approaches would be most helpful to you?

Your insights and feedback would be incredibly valuable in shaping this project, and I truly appreciate your time and thoughts. Thank you so much for considering my request, and I look forward to hearing from you!

Is it at all possible for Down syndrome to be completely missed? At 3 month old? I’m unsure whether to raise it with the doctor and risk looking paranoid or silly but I feel there’s a possibility my daughter may have some markers. Thanks in advance.

I have an adult who just came to the US and is looking for services available in San Bernardino County. His first language is not English, so I am helping him.

My cousin is in his 20s. Are there any programs, methods, or resources that you can offer me to help him learn to read, write, and speak?

I have a question about discharge planning and Case Management after my my son’s surgical procedure this month. He has both Medicare and Medicaid under a special needs plan with Anthem Healthkeepers.

He is going to have a left hip arthroscopy to repair a tear in his labrum and possible chondroplasty. He will spend one night in the hospital.

I have tried calling Case Management at the hospital.going and not received a return call but want to be sure that case management or discharge planning schedules his post procedure home healthcare and a ride home from the hospital by ambulance because we live on a second floor and he will need to be transported up on a stretcher.

Is this covered by Medicare? Or Medicaid or both? Should I be calling to schedule the in-home physical therapy and occupational therapy and whatever he qualifies for and get the ambulance ride home or is this something I should wait and have the hospital help me with?

He is a 49-year-old adult and weighs over 200 pounds and it’s just us two living together, so I’m going to need help getting him up the steps and absolutely need help hopefully by the next day with getting him up, knowing how to help him move and getting him to the bathroom, how much weight he can bear on that leg with the surgery is being done on so many questions and don’t know who to ask.

Hello I’m kinda new to Reddit and I have a son who has Down syndrome. At first it was a breeze. As soon as he could get his hands on stuff omg he was like a little tornado to this day I’m scared of him and his behavior has been getting worse. Head hitting is his favorite thing to do slam his head into anything that will cause him harm he wants to hurt himself constantly. We tried the helmet but he can take it off now he’s getting bigger to where I can’t carry him like I would b4 I would pick him up and hold him. Well now he is so big I can’t pick up the flopping on the ground, hitting head, 100lb child in public. I’m not sure if this will end or phase out but I almost feel like tapping out sometimes 😪😢😞

Anyone here part of the LGBT community? My partner and I are realising that part of our journey is coming to terms with the post birth diagnosis AFTER going through IVF. We likely won't have funds to do another cycle and this has caused some difficult feelings as well. We are struggling to find others but it would be nice to have people to talk to!