Writing about lupus, especially first-hand experience, intersectional experience, etc.

[u/holymodalsquare]

I'm doing some research on the cultural history of SLE and wondering if anyone has recommendations on books and articles about Lupus, especially by people with Lupus :-)

So far the most interesting thing I've found is an edition of 'Vital Signs' put out by the Black Womens Health Project in 1984, which includes some of the first published accounts of SLE.

It's written about in an interesting article about shifting perceptions of Lupus and autoimmunity that talks about Black feminist writing on lupus here, for those who may be interested.

[u/ktbug1987]

Not necessarily intersectional but the original spoon theory essay was by a woman with lupus and spoon theory has been now widely adopted by the entire disability community

[u/ktbug1987 → u/ktbug1987]

Original:

https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/