How do i make the fatigue less or how do i manage it? I've got school to do and exams are coming and i have been failing for the past 2 years because of this pain, fatigue, and brain fog.

Are there any supplements that would make you less fatigued? Or at least make you feel kinda okay to at least study?

Because i can't describe how crushing the fatigue is and how sleepy i feel after 20 min of studying, and that feeling stays for the whole day.

I've spent the last two years creating a journal for Fibromyalgia and Chronic Pain/Illnesses - It's finally been released and it's available in most countries. There's a lot more in it, but I didn't wanna spoil the entire journal for you guys! So, go have a sneak peek and if you, or someone you know suffers from Fibro, Chronic Pain, ME/CFS, or any other chronic illness, this is the journal you need - it'll also make a great gift! ❤️ This journal was not created for profit or gain, I really just want to help our community as much as possible.

If you'd like to order, you can do so here: Available here

So I wanted to leave the current country I’ve been living in for the past 20 years and I’ve tried before several times before I got my fibromyalgia. I had other health issues such as endometriosis and would get a big flare up of pain and a dip in health Everytime I tried to apply to jobs and was getting closer to the real possibility of moving. This time I said I know how my body reacts and I should just proceed no matter how much it’s kicking back….the reasons being to get closer to my family and back to my roots and because while my life is comfortable I’ve never fitted in the culture. But it’s comfortable and safe. People are less critical. I’m so afraid of not being up to thé challenge. I have protected myself since I got sick and avoided stressful situations and challenges. But now I want to move For example I have an opportunity for a big presentation and just that sends my stomach into knots and fear for flare Anyone relates to that?

Hi! Is there somebody who is road cycling or gravel biking? Which is better or more comfortable? I am road cycling, but also after bike fitting I have pain in my knees and elbows. I considered switching to a gravel bike, would it help something?

I hope that everyone can read this article. It is a study on long covid with application to fibro, CFS, and more. The article incorporates other studies on the issue. https://apple.news/AEjoWlPe7TdGxSsyK_UeFug

I've had fibromyalgia my whole life, experiencing throbbing pains as a young child before I learned the word, I described my throbbing pains as "beeping with pain". Now, into my early adulthood, I noticed a specific pain on occasion, which after googling I can only assume is "allodynia"? It usually occurs on my arms, but the pain will come and go, sometimes here for an hour, sometimes many, many hours... feels like even the air hurts, almost a sunburned like sensation?

Does anyone else experience this?

I am 21yrs old and have been dealing with chronic pain since I was a teen. My mom and I think it's fibromyalgia since she has in and my grandfather on my dad side has it. After 3 different family doctors I have one that has helped me get to go to a rheumatologist and my appointment is soon and I'm extremely nervous and scared.

I was wondering if anyone would be will to explain what would happen during the appointments anything at all would help. I'm bad at explaining myself and I'm worried if I mess this appointment up some how I won't ever get thr help I need.

Thursday, I went to my boyfriend's after work, he called me. He asked me if I was ok, I was confused. He said there was something wrong with my car, we got to this place and I parked.

Imagine my surprise, when the left side of my car door was smashed in! Holy hell! I work as a crossing guard, I parked in a church! (I found out it is abandoned and there are no cameras)

We just dropped off the car and got a rental today, I haven't driven since Friday when I took the car home.

My right leg and hip started hurting and it's annoying. I am used to my left leg giving me issues, but my driving leg?

i don’t know if it’s a fibro thing but i’m seriously concerned and even my doctors don’t know. obviously not actual RLS but i get such an uncomfortable feeling in both my eyes/face and my chest/lungs. it’s honestly indescribable, the eyes one feels like i’m going blind and i have to move around. and the chest one is concerning me the most because i smoke and have done for years, it kind of makes it hard to breathe and the same thing as with the eyes, need to move. it’s not a typical “i can’t breathe” which is why it’s indescribable, sometimes i can put it down to anxiety and sometimes i really can’t. my lung capacity is 96% and my eyes are fine as far as they can tell. does ANYONE know? dying out hereee😂

I just recently got a diagnosis and I'm just looking for some tips...my doctor said CBT therapy is like a good option as well as light aerobics but I'm feeling a bit discouraged by the idea that I have to train my brain to ignore the pain and I'm just looking to see if there's any like random tips/tricks that have helped anyone? She mentioned meds and light aerobics and stuff too but the CBT made me like really anxious (in the sense that like it came off like 'it's all in my head and I just need to not think about it'?)

I already have a cane I use, trying to be better about using it consistently because I'm still in the stage of forcing myself to do it alone without help? But yeah, any tips and tricks, as well as product recommendations if anyone has like pain relief gel or something like that, or just general things that would help like accomodations products idk? I'm just trying to see what's out there because right now it doesn't feel like anything will truly help in the sense that like I'm tired of being in pain so much and all that lol just a bit discouraged

I'm also in the process of trying to get in for autonomic testing at my doctor's recommendation so idk if that would impact things I could do?

I hope this makes sense I'm just a bit anxious about the whole thing and need some advice from people who have been managing it for awhile? I feel like that would help with my anxiety lol

I was today years old when I realized that it is not normal for your pelvic floor muscles to always be clenched. I know that sounds dumb, but I swear mine have been in a constant “clenched” state for as long as I can remember so I never thought twice about it. It’s completely involuntary for me. I tried unclenching and it feels so unnatural. But I went down this rabbit hole due to some issues I’ve been having, that I think could be pelvic floor dysfunction.

Clenching and tensing my muscles throughout my body is common for me, and I know for many others with fibromyalgia. So I was just curious if anyone else’s pelvic floor muscles are in a constant state of contraction/being clenched?

I feel like I can't move. In fact, I'm in pain being still.

Anyone wear a cgm on their arm and have it randomly hurt? I haven’t had a flare for about 2-3 weeks which is completely abnormal for myself. I started using a cgm again, Libre 3 plus, around the same time. Last night something triggered a flare, every single muscle hurt and my legs felt like weights. Today it hasn’t been as bad but all of a sudden my cgm hurts, my muscle hurts, the whole arm hurts. It’s similar to what I would normally feel putting it on or if I have gotten a shot. Just curious because it never hurts days later, I have 8 days out of 15 left.

I know my pain is real.

I’ve been diagnosed by a doctor. A physiotherapist has stuck needles into my very tight muscles. There are witnesses to the effects on my body. It’s not just “in my head” (such a silly phrase anyway; pain is experienced through the brain for people without fibromyalgia, too…)

And yet - I worry so often about being believed. I worry I’m making a fuss if I speak up for my needs. I worry I’m taking up space.

But when it comes to other people? I don’t hesitate to speak up for their right to exist. I feel enraged if someone is treated unfairly.

However, I’m in a situation right now where I have to stick up for myself because the alternative would be too much of a sacrifice to my health. I’ve been struggling with the self-gaslighting while trying to conjure some of that mama bear energy I reserve for other people to help me get through this. Not quite successful so far haha

Does anyone else relate?

After I was initially diagnosed with Fibro by my rheumatologist I saw every other doctor there was to rule out other potential conditions but to ultimately confirm the original diagnosis. I then fell into the trap of not completely believing all of these doctors and would go back often as if to say “are you sure it’s not something’s else?” After 6 years I now accept my Fibro and all that it includes but have to constantly push back the temptation to keep “looking”. I’m now down to just my PCP for semi-annual visits unless something really unusual pops up. How often do you see your doctors?

I have a question. Does anyone have extremely dry lips?Like crack a bleed no matter what i put on them. Maybe somewhat dry mouth but not really. My right shoulder like joint... feels like I bruised it or torn something. It's been almost 2 weeks and it still is hurting. .I also have extremely bad like nerve pain toothache that happened outta nowhere. That pain goes right to my ear and my upper cheek. Also the ringing of the ears is crazy😔 the dizziness no matter how much water or electrolytes I drink. I have been tested 6 months apart for lupus and sjorgen's disease. ALLLL NEGATIVE. So I guess I just do have fibromyalgia but it seems that with every "flare" it's something more and new and intensifies. . I'm so miserable. Also I'm a type 2 diabetic and my sugars have been crazy. No I'm not sick at all. Does anyone here have t2d? Does a flare spike your blood glucose at all? #tell me your flares please.

Lately I’ve been having a lot less energy than usual, and I don’t have a lot to begin with. So aside from copious amounts of caffeine which is my go to what would you folks recommend to help me get moving around a bit more.

Ok. Once again I pop into here to see if this is just a me thing.

Why? Because we all have such crazy, numerous things going on at once we all have to check in with each other.

“Hey do you do this? You do? Oh cool, it’s not something else I have to worry about, probably”.

So. My legs.

Why don’t they work now? I try to walk anywhere and it’s either like trying to move with a resistance band on my everything OR I feel like they are….loose? I don’t know how to explain it. It’s not quite fatigue, or overuse. It’s something closer to the feeling you get out of a pool crossed with when you get off a boat or elevator and you feel a bit wibbly. Or like a loose tooth, but it’s in my joints. And it’s my leg trying to step over something and it feels like it’s this close to just failing. When resting I feel like I NEED to stretch out as far as I can really hard. I do, but nothing changes.

Standing on my feet, it feels like they are constantly shifting from side to side, like rocking.

I just randomly fall over. No reason. I always catch myself and it’s like I stumbled but while standing still. If I’m tired, I fall into the hallway wall. I’m so used to it, I keep walking with my head sliding against the wall until I can sort of get upright again.

So is this just me? Also, advice? More stretches, some squats? How do I stop feeling like jelly?

I'm pretty much in pain every day, when it gets really bad, it's my neck and head that hurts awfully. I guess I'm not sure if that "counts" as a fibro flare or what a flare would be for me.

What does your every day look like compared to a flare up?

Thanks!

Does anyone else find that Fibromyalgia has absolutely destroyed their fine motor skills, specifically in their hands?!

I'm an avid painter, and over the years that my symptoms decided to develop and i finally reached a diagnosis, my hands have forsaken me. Cooking in the kitchen, like using tongs or whisks. Painting, especially the smaller the brush and strokes get. Applying makeup, or using scissors for precise cuts. It all hurts, some more than others and my hands shake uncontrollably.

Recently i was helping a young girl fix her homemade friendship bracelet, it took me nearly 10 minutes to put maybe 3 beads back on, my hands were practically vibrating and even with tension gloves was excruciatingly painful, and precarious.

It really made me feel exhausted and defeated. I'm barely an adult (20F), and always get shocked comments from medical personnel i see for appointments. Especially since my Fibro journey started nearly 4 years ago at 17.

I hate thinking about how Fibro is affecting my life at such a young age and the things it will take from me for the rest of my life.

Okay, not literally, but my upper traps and neck are hurting so bad today that my teeth do feel tingly. Anyone else experience this, or am I just weird? I’m not sure what caused this recent flare up, but I sure could do without it!

I get sick way more than I should it seems. November I had bronchitis, battled that for weeks. Now I've been sick since last Thursday again with some cold/flu.

Now that I've been sick for 6 days I'm still not better and to make it worse I think it triggered a fibro flare. My shoulder blades feel like there on fire even sitting still. My body hurts but in a different way from being sick not your general oh I had the flu type ache no this is deep in my muscles and legs. I feel like I catch everything that blows my way and it is miserable.

Do you guys experience this too, getting sick alot? Or when you do get sick it being way more severe for you vs someone without fibro?

I'm feeling discouraged and it sucks. Sorry to be whiny I try to keep my posts positive but man some days are just hard.

Hi all, I am asking the above question in terms of your comfy relaxation spot and especially in terms of an office chair situation.

I am having the hardest time sitting while having low back and hip pain and would love recommendations for anything you’ve found to be useful/helpful.

Okay does anyone else notice this? You wake up and you're not flared up! You're feeling decent, so you do some shopping, cleaning, whatever it is that you haven't been able to do, you feel fine but then the second you sit down for the day the symptoms come CRASHING in. Pains, fibro fog, fatigue, etc.