2

Mental Health care is making my cataplexy worse??? Anyone else??
 in  r/Narcolepsy  1d ago

That's awesome!

My therapist is having me do regulating exercises at like scheduled times in the day. I call it my "therapist mandated chill the fuck out time"

2

Mental Health care is making my cataplexy worse??? Anyone else??
 in  r/Narcolepsy  1d ago

This makes sense.

I'm glad you've figured out what works for you and I appreciate your insight!

2

Mental Health care is making my cataplexy worse??? Anyone else??
 in  r/Narcolepsy  1d ago

Oh my god I've gotta use that at some point

3

Mental Health care is making my cataplexy worse??? Anyone else??
 in  r/Narcolepsy  2d ago

It seems like from others responses it's a result of actually feeling things 😅 So probably shitty home situation is not helping but after a while we should adjust at least

1

Mental Health care is making my cataplexy worse??? Anyone else??
 in  r/Narcolepsy  2d ago

That is good to know. I've only just started so this helps me prepare for the worst!

1

Mental Health care is making my cataplexy worse??? Anyone else??
 in  r/Narcolepsy  2d ago

This is really helpful thank you!!

r/Narcolepsy 2d ago

Advice Request Mental Health care is making my cataplexy worse??? Anyone else??

7 Upvotes

Hello!

I've somewhat recently started prozac! My depression mostly manifested as emotional blunting and numbness on top of the fact that I have a dissociative disorder. (I've got quite the cocktail). With both the prozac and appropriate mental health care I've been doing so good but I've noticed an increase in cataplexy episodes.

I wonder if anyone else has experienced something like this?

1

Invisible: Power and Control in Queer Populations (US, 18-65, LGB)
 in  r/lgbtstudies  13d ago

Hello!

I was wondering if I could share your study on my social media? The sort of audience I have would be very interested in this!

5

Does living in a warmer environment relieve your hEDS body pain?
 in  r/ehlersdanlos  13d ago

I'm so jealous right now omfg

My family is from Chicago but moved to kansas when i was on middle school. I had been back for about s semester cause I'm doing my masters at UIC but had to leave to help my fiance deal with stuff and do my program remotely.

We both have EDS so we're so desperate to get back but I gotta get a big boy job first which is hard to do when I haven't graduated yet 😭

1

What's your HOLY GRAIL Tip or Product??
 in  r/ehlersdanlos  13d ago

I have two and both are stomach related.

1) Emetrol. I feel obligated to send a gift basket to the pharmacist who recommend it to me. I was on a high dose of clindamycin for a tooth infection and zofran was just not touching it. She told me to get emetrol and I could rotate that every 4-6 hours. I got it and chugged down the full adult dose and 15 minutes later it was like I had never felt sick. I haven't tried like generics but I'm sure they're just as good.

2) FD Gard. My old gastro had me start this since my IBS was causing Dyspepsia and there's some concerns of developing gastroparesis if it wasn't taken care of. Oh my god I took it and that was the first time I didn't feel uncomfortable after eating. The downside is it's really expensive and doesn't really have a generic. There's only really generics of their other product IBGard that's geared towards like intestines and not the actual stomach. Some people have success with peppermint pills because one of the main ingredients is a menthol derivative. I alas did not have that luck.

26

Does living in a warmer environment relieve your hEDS body pain?
 in  r/ehlersdanlos  13d ago

Oh my god no I am miserable. In florida and my pain is so much worse. Trying to get to Chicago.

1

Are these normal in a portable AC?
 in  r/hvacadvice  17d ago

Thank you so much!

r/hvacadvice 17d ago

General Are these normal in a portable AC?

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1 Upvotes

Hello!

We recently got the GE APWD07JASG and we had some like rattling with it so I took off top and didn't see like anything loose or glaringly wrong with it. I did take pictures of some stuff that may be a little concerning but otherwise the thing is still working.

If it doesn't need fixing great! If it does need fixing and I could reasonably do it myself please tell me how. I got this thing on super sale and definitely cannot afford a pro or a replacement.

1

Has anyone else dislocated by masturbating? / during sex?
 in  r/ehlersdanlos  Feb 15 '25

YES

My knees weirdly enough are the victim. Both my shoulders will sometimes. My partner also has EDS and I usually dislocate a few of his fingers 😅

r/Mattress Nov 07 '24

Recommendations Dupe for Country Inn & Suites?

1 Upvotes

Hello!

I'm realatively new to the mattress world and my fiance and I are needing to find something that can last us a while and meet our needs. Both of us have Rheumatoid and EDS so it's been difficult to find something.

Until recently we stayed at a country inn & suites in Port Orange and it was the most comfortable bed ever. That was probably the first time I ever woke up without something being dislocated.

From some googling I found that this is the one they use apparently https://sertaguestpurchase.com/mattresses/hotel-mattress/serta-elite-5000-plush-two-sided But I know hotel mattresses dont last long. We both are around the 200 lbs range so we really need a good mattress that is graded for over 250 lbs.

Any suggestions would be reallt helpful cause I'm not even sure where to start

r/BeardAdvice Sep 09 '24

Saftey Razor Suggestions?

1 Upvotes

So long story short while I can grow a beard it is a sensory nightmare. The regular gillette razors shred my face and depilitory creams result in a rather nasty burn.

I know safety razors are better for the skin but there's so many options out on the market I'm not sure which to go with. So I figured the folks with beards would be the best people to ask?

2

Can't find brand or store this came from!
 in  r/Candles  Dec 16 '23

THANK YOU SO MUCH

r/Candles Dec 16 '23

Can't find brand or store this came from!

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15 Upvotes

This is the only candle my fiance is not allergic to nor does it give him a migraine and I have done so much googling and cannot find it. The sticker on the bottom of the jar is like illegible so this is all I've got. Anyone have any ideas?

2

I love my local gamestop
 in  r/GameStop  Aug 28 '23

Snacks and energy drinks are honestly a great suggestion but as a former employee with major food allergies just having a chance to chat and be friendly was a HUGE bonus for me. I loved talking with our regulars and if I see them in town we still chat.

That was my only job and I couldn't afford consoles let alone new games on steam (I actually had to sell my switch while working there cause I couldn't pay bills 😬) so a couple of regulars would tell me about what they had been playing and why they liked it. I think the most memorable moment was when a regular was coming in to sell a game that I had really wanted and when he realized it he told me to take it off his ticket and gave it to me. It honestly made my whole week.

You don't have to go as far as like that but just having regulars that were such cool people and fun to talk to was amazing.

2

Dealing with Gastroparesis
 in  r/ehlersdanlos  Aug 25 '23

I appreciate the intent but gastroparesis is different than immobility of bowels. Gastroparesis is when you're stomach is not emptying as it should into your intensintes. You're not supposed to have high fiber foods as that actually makes it worse and can cause flares and senna doesn't help with stomach emptying but with intestinal emptying.

I normally wouldn't respond to advice that wasn't useful to me but if this advice was given to someone who didn't know this it could land them in the hospital.

2

Dealing with Gastroparesis
 in  r/ehlersdanlos  Aug 25 '23

What's funny is my partner jokingly put the back massager on my stomach like fove minutes ago and it helped

r/ehlersdanlos Aug 25 '23

Seeking Support Dealing with Gastroparesis

5 Upvotes

Hello!

My gastro gave me some treatment options to help but since my insurance was changing and he didn't take the new one (the joys of turning 26) he didn't have the time to get me a gastric emptying test. He said based on my symptoms it sounds like I'm having motility issues and my autistic ass didn't realize that was what he meant. He knows my tendency to panic with my health so I think he was trying to avoid that 😅

Recently it's been getting worse sincr I can't afford the OTC options he gave me right now and I'm not sure what to do. A lot of the articles I read for diet changes (eating smaller meals more frequently, avoiding high fiber and high fat foods, etc) are things I have been doing but I feel so full it's getting to the point that somedays I struggle taking my meds.

These flares come and go so it doesn't stay bad but I'm really struggling because food has always been a source of comfort for me and how full I'm getting is making my gerd way worse.

Just does anyone have advice for dealing with flares like these? It makes me just really tired all the time since I work in retail and I'm on my feet frequently.

r/lgbtstudies Jul 16 '23

Study / Research Access to non-invasive and non-surgical options to gender affirming care (US, 18+)

2 Upvotes

I would like to invite you to participate in a voluntary research survey that looks at access to non-invasive and non-surgical options for gender-affirming healthcare procedures.

Link to survey: https://uic.ca1.qualtrics.com/jfe/form/SV_bkdRjSLq2Nyp0iO

Procedures: We would like to know more about you and your experiences with obtaining (or your desire to obtain) gender-affirming care. Survey data will be collected through a secure survey tool, Qualtrics. Completing the survey should take 30 minutes of your time. You will be asked to answer basic questions about yourself, your experiences, and your well-being. The survey will close on Saturday, August 12th, 2023, at 11:59 pm CT.

Eligibility: - You want to pursue, are pursuing, or have pursued gender-affirming care - You must live in a U.S. state or territory - You must be 18 years or older

Compensation for Participation: When you complete the survey, you will have the option of entering your e-mail address into a drawing where you could win one of eight $100 electronic gift cards for an online retailer. You may choose to forfeit your entry in the drawing and instead elect to have $1 donated to the Kind Clinic, a non-profit dedicated to providing free gender-affirming care services. See the following link for more information about the Kind Clinic: https://kindclinic.org/. The odds of winning the drawing are 1 in approximately 185.

Questions: If you have any questions about the research, please contact the Principal Investigators, a research team at the University of Illinois at Chicago, at tnbhealth@uic.edu. If you have questions or concerns about your rights as a research subject, you may contact the UIC Office for the Protection of Research Subjects (OPRS) anonymously at 1-866-789-6215 (toll-free)/ 312-996-1711 or email uicirb@uic.edu.

6

Reversal of bottom growth after stopping T, anyone else experience this?
 in  r/ftm  Jul 10 '23

That was my thought process around it when I realized and then was kind of annoyed 😅

r/ftm Jul 10 '23

Discussion Reversal of bottom growth after stopping T, anyone else experience this? NSFW

5 Upvotes

So I was on T just shy of five years before I stopped due to health reasons and it's been three years since I stopped. I had a decent amount of bottom growth. I wasn't like huge but I had enough that it sort of "stuck out" even when not arroused.

Now three years down the road I realize I am now MUCH smaller. Nearly as small as I was pre-t.

I was told that bottom growth was permanent but for me it clearly isn't. Has anyone else experienced this?